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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Understanding IVIG and SCIG

January 17, 2018
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How I explain my primary immunodeficiency - Sam Michael Long's perspective

January 12, 2018

Cómo explico mi inmunodeficiencia primaria - La perspectiva de Romina Flores L.

January 05, 2018

Common variable immune deficiency (CVID) - IDF GROUNDBreaking Stories, Avery

October 24, 2017

X-linked agammaglobulinemia (XLA) - IDF GROUNDBreaking Stories, Keegan

October 24, 2017

RAG1 severe combined immune deficiency (SCID) - IDF GROUNDBreaking Stories, Savannah

October 24, 2017

Common variable immune deficiency (CVID) - IDF GROUNDBreaking Stories, Jordan

October 24, 2017

Common variable immune deficiency (CVID) - IDF GROUNDBreaking Stories, Karissa

October 24, 2017

IgG subclass deficiency - IDF GROUNDBreaking Stories, Shane

October 24, 2017

Hypogammaglobulinemia & CVID - IDF Reel Stories, The Christy family

September 08, 2017

Combined immune deficiency (CID)/ MAGIS syndrome - IDF Reel Stories, Whitney Ward

September 08, 2017

Chronic granulomatous disease (CGD) - IDF Reel Stories, Megan Trahan

September 08, 2017

Chronic granulomatous disease (CGD) - IDF Reel Stories, Kathryn & Cameron Paul

September 08, 2017

WHIM - IDF Reel Stories, Christine House

September 08, 2017

Common variable immune deficiency (CVID) - IDF Reel Stories, Mark Leventhal

September 08, 2017
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Our Immune System

August 15, 2017
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Nuestro Sistema Inmunologico

July 12, 2017
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El cuento de una cebra

July 12, 2017

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

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IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.