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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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IDF Patient & Family Handbook for Primary Immunodeficiency Diseases, Sixth Edition (Korean)

March 07, 2025
Cropped stock photo from handbook cover.

Manual para pacientes y familias sobre inmunodeficiencias primarias, sexta edición

February 19, 2025
Nurse examining patient with the text "Decoding PI: Unraveling the GI Connection".

Decoding PI: Unraveling the GI connection

December 06, 2024

Q&A: Antibody deficiencies with Dr. Luke Wall

November 07, 2024
Person performing lab work

Laboratory tests, patient story critical in diagnosing PI

October 03, 2024
IDF 2024 research grantees Drs. Emily Harris, David Nguyen, Alexandra Martinson, and Laruen Meyer.

Foundation announces research seed grants

September 20, 2024
taking an online quiz

Immune system self-assessment

September 13, 2024
beach scene

New documentary film released

August 20, 2024
2023 Annual Report

2023 Annual Report

August 19, 2024
IDF video

Translating microbiology of infections into genetics of immunology: 2024 PI Conference

August 05, 2024
School nurse holds stethoscope to child's heart

School nurses aid in care of children with primary immunodeficiency

April 16, 2024
Three doctors huddled in a discussion

Primary immunodeficiency education series boosts knowledge

March 26, 2024
Mom jumping with two kids.

Newly diagnosed kit for kids with PI

March 22, 2024
IDF publications laid out on a table with blue IDF tablecloth.

Newly diagnosed kit for adults with PI

March 22, 2024
Y-shaped antibody molecule.

Decoding antibody deficiency diagnoses

January 25, 2024
NA PA

Consider nurse practitioner or physician assistant for care

November 27, 2023
IDF video

PI and lung health

November 03, 2023
IDF Think Zebra logo

THINK ZEBRA! poster

July 24, 2023

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.