Focus group and survey volunteer

Focus group and survey volunteer

The Immune Deficiency Foundation is often approached by organizations to help find volunteers who can represent the voice of the patient in focus groups and surveys. As a focus group and survey volunteer, you will share your personal experiences on a number of topics impacting the treatment and quality of life for people living with immune deficiencies. 

Responsibilities

You will hear from us when an opportunity matches your experience. Researchers often look for participants based on criteria such as diagnosis, secondary diagnoses, treatment, and basic demographic information. 

Qualifications

To be considered for this role, you must: 

• Be at least 18 years old. 
• Either be diagnosed with an immune deficiency or be the caregiver of a person with an immune deficiency. 
• Be willing to share information related to your diagnosis, treatment, and personal experiences.