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National Disabilities Rights Network

The National Disabilities Rights Network (NDRN) is a nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP) for individuals with disabilities.

National Family Caregivers Association

The National Family Caregivers Association (NCFA) is a grassroots organization created to educate, support, empower, and speak up for millions of Americans who care for chronically ill, aged, or disabled loved ones.

National Organization for Rare Disorders

The National Organization for Rare Disorders (NORD) is a non-profit organization that provides information, programs, and services for thousands of rare medical conditions, including primary immunodeficiencies.

National Patient Travel Center

The National Patient Travel Center is a nonprofit organization that provides a variety of services to individuals and families seeking ways to travel long distances for specialized medical evaluation, diagnosis, and treatment.

NeedyMeds

NeedyMeds provides information on programs that help people facing problems paying for medications and healthcare; assists those in need in applying to programs; and provides health-related education using innovative methods.

Partnership for Prescription Assistance

The Partnership for Prescription Assistance brings together America’s pharmaceutical companies, doctors, other healthcare providers, patient advocacy organizations, and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that’s right for them.

Patient Notification System

The Patient Notification System is a program developed by the Plasma Protein Therapeutics Association (PPTA) to notify patients who receive plasma products, such as intravenous immunoglobulin (IVIG), about product recalls.

Patient Services Incorporated (PSI)

Patient Services Incorporated (PSI) is a nonprofit charitable organization dedicated to subsidizing the high cost of health insurance premiums and co-payments for persons with specific chronic illnesses, including primary immunodeficiencies.

RxAssist

Patient assistance programs are run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine. RxAssist offers a comprehensive database of these patient assistance programs, as well as practical tools, news, and articles so that healthcare professionals and patients can find the information they need.

Save Babies Through Screening Foundation

Save Babies Through Screening Foundation educates parents, pediatric healthcare providers, and policy makers about available comprehensive newborn screening.

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