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Bone marrow transplant restores health of boy with CGD
Pharming
Pharming manufactures Joenja, also known as leniolisib, the only treatment for activated phosphoinositide 3-kinase delta syndrome (APDS) approved in the U.S.
BenefitsCheckUp
Many older people need help paying for prescription drugs, healthcare, utilities and other basic needs. Ironically, millions of older Americans—especially those with limited incomes—are eligible for but not receiving benefits from existing federal, state and local programs. Ranging from heating and energy assistance to prescription savings programs to income supplements, there are many public programs available to seniors in need if they only knew about them and how to apply for them.
Caregiver Action Network
The Caregiver Action Network (CAN) is a family caregiver organization working to improve the quality of life for those who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.
Children’s Defense Fund
The Children’s Defense Fund is a nonprofit organization devoted to children’s issues, including the Children’s Health Insurance Program.
Families USA
Families USA is a non-profit organization dedicated to the achievement of high-quality, affordable health and long-term care for all Americans. The website contains state and national resources.
Family Voices
Family Voices is a national organization that provides information and education concerning the healthcare of children with special health needs.
Health Insurance Resource Center
A resource for families, individuals and the self-employed, the Health Insurance Resource Center provides the tools to become a better-informed health insurance consumer.
Invisible Disabilities Association
The Invisible Disabilities Association (IDA) helps those living with various conditions, as well as their loved ones, through its website, articles, literature, projects, and seminars.
National Committee for Quality Assurance
The National Committee for Quality Assurance (NCQA) is a private, not-for-profit organization dedicated to assessing and reporting on the quality of managed care plans.