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Miracle Flights

Provides children and their families free flights to distant, specialized care and second opinions.

Keep Swimming Foundation

Keep Swimming Foundation provides relief to families of critically ill patients who require extended inpatient medical care at an accredited hospital through micro-grants ranging from $100 to $1,500.

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Lunch and Learn: Congenital Athymia

May 10, 2023
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Primary immunodeficiency patient registry moves into a new era

May 09, 2023

Centers for Medicare and Medicaid Services

The Centers for Medicare and Medicaid Services (CMS) provides information for individuals receiving services from Medicare, Medicaid or SCHIP.800-633-4227

Center for Biologics Evaluation and Research, FDA

A division of the Food and Drug Administration (FDA) whose mission is to protect and enhance public health through regulation of biological products to ensure their safety, effectiveness and timely delivery to patients. This agency provides information on biological products, such as blood and plasma, including new product approvals, adverse events, product recalls and withdrawals.

Centers for Disease Control and Prevention, National Immunization Program

This division of the CDC provides information on general vaccinations and specific precautions for individuals affected with primary immunodeficiencies.

Latin American Group for Primary Immunodeficiencies (LAGID)

The Latin American Group for Primary Immunodeficiencies (LAGID) is a professional o

International Nursing Group for Immunodeficiencies (INGID)

The purpose of the International Nursing Group for Immunodeficiencies (INGID) is to improve and extend the quality of nursing care of patients with primary immunodeficiencies, and to increase the awareness and understanding of primary immunodeficiencies amongst nurses. International Patient Organization for Primary Immunodeficiencies (IPOPI) www.ipopi.org The International Patient Organization for Primary Immunodeficiencies (IPOPI) is an international organization whose members are national patient organizations for primary immunodeficiencies.

European Society for Immunodeficiencies (ESID)

The European Society for Immunodeficiencies (ESID) is a non-profit medical organiza

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