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X4 Pharmaceuticals

Accredo Healthcare

Amgen Rare Disease

Amgen Rare Disease manufactures Actimmune, recombinant interferon gamma-1b, which is used to lower the risk of serious infection in those with chronic granulomatous disease. 

Amgen Rare Disease also offers free dihydrorhodamine (DHR) testing for CGD through ARUP Laboratories.

Project ECHO. Health worker with patient

Project ECHO clinician series: Treatment options for the PI community

May 08, 2023
Person typing on a computer

Paper explores implementation of newborn screening for SCID and other conditions

May 05, 2023
Person typing on a computer

What the end of the public health emergency means for those with PI

May 04, 2023

Xembify

Administration: SCIG 
Concentration: 20% (200 mg/mL) 
Approved for: Ages 2+

Report side effects/adverse reactions at https://www.grifols.com/en/notification-of-adverse-reaction

Package insert Product website Copay assistance

Privigen

Administration: IVIG 
Concentration: 10% (100 mg/mL) 
Approved for: Ages 3+

Report side effects/adverse reactions at Adverse.Events.Global@cslbehring.com or 1-866-915-6958.

Package insert Product website Copay assistance

Panzyga

Administration: IVIG 
Concentration: 10% (100 mg/mL) 
Approved for: Ages 2+

Octapharma and Pfizer both distribute Panzyga. Each company has its own product website and may have its own copay assistance program. If your infusion center or hospital supplies Panzyga, it is typically distributed by Octapharma. If you get Panzyga through a specialty pharmacy/for home care, it is distributed by Pfizer. 

Report side effects/adverse reactions at 201-604-1137.

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