This site contains information about Severe Combined Immune Deficiency (SCID) with links to journal articles, latest research developments and patient support.

The Hyper IgM Foundation works to improve the treatment, quality of life and the long term outlook for children and adults living with Hyper IgM Syndrome through research, support, education and advocacy to families and patients.

Founded and staffed by HAE patients and HAE patient caregivers, the U.S. Hereditary Angioedema Association, Inc. (US HAEA) is a nonprofit patient advocacy organization dedicated to serving persons with angioedema. The Association provides HAE patients and their families with a support network and a wide range of services including physician referrals, and individualized patient support.

The Chronic Granulomatous Disease Association of America (CGDAA) is committed to advocating on behalf of patients, carriers, and families by providing clear, accurate, and independent news and information about CGD and advancing CGD research.

The Chronic Granulomatous Disease Association (CGDA), founded in 1982, is a nonprofit international support group for persons with chronic granulomatous disease (CGD), their families, and physicians. The organization networks patients with similar CGD-related illnesses or infecting organisms. It provides research grants aimed at finding a cure for CGD.

The A-T Children’s Project is a nonprofit organization that raises funds to support and coordinate biomedical research projects, scientific conferences, and a clinical center aimed at finding a cure for ataxia-telangiectasia, a lethal genetic disease that attacks children, causing progressive loss of muscle control, cancer, and immune system problems.

The United States Immunodeficiency Network (USIDNET), is an NIH-funded research program of the Immune Deficiency Foundation (IDF), established to advance scientific research in primary immune deficiency diseases.

Chiesi manufactures Revcovi, the only recombinant adenosine deaminase (ADA) approved to treat ADA-SCID in the U.S.