Mast cell activation disorder with Dr. Anne Maitland
Gene editing shows promise for Wiskott-Aldrich syndrome
Consider nurse practitioner or physician assistant for care
Mom advises parents to research and advocate for CGD
Lunch & Learn: ataxia-telangiectasia
How plasma saved lives through the ages, from 1918 to WWII to today
PI and lung health
Update: UnitedHealthcare drops four immunoglobulin products from policies
Priority Health won’t cover SCIG as first-line treatment
Rare Wish
Rare Wish is a 501 (3) c nonprofit organization (and sister organization to Rare Strides) with the mission to improve the quality of life for rare families by granting wishes, funding clinical innovation, and offering free healthcare tools.

