International Patient Organization for Primary Immunodeficiencies (IPOPI)
International Patient Organization for Primary Immunodeficiencies (IPOPI) is an international organization whose members are national patient organizations for primary immune deficiencies. The website provides general information on primary immunodeficiency disease and resource contacts for patients and professionals worldwide.
Immune Deficiency Foundation
The Immune Deficiency Foundation, founded in 1980, is the national non-profit patient organization dedicated to improving the diagnosis and treatment of patients with primary immunodeficiency diseases through research, education and advocacy.
Grifols
Gamunex Connexions Program (comprehensive support program): 888-694-2686
Xembify Connections (copay assistance and patient assistance program): https://www.xembify.com/en/xembify-connexions
CSL Behring
IDF strategic plan
Review the three strategic objectives outlined by IDF to grow its community and improve PI care.
SCID research paper explores types of uncertainty faced by parents
March 31, 2023
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Remember The Girls empowers women affected by X-linked conditions
March 30, 2023
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Leniolisib approved for treating ultrarare APDS 1 and 2
March 28, 2023
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PI education kit for schools
March 28, 2023
Order free kit
Project ECHO clinician series: Signs and symptoms of PI
March 27, 2023
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