Cincinnati Children’s is the most experienced hospital in the nation in treating hemophagocytic lymphohistiocytosis (HLH). Their HLH team includes researchers and physicians who have studied the disease extensively. They care for between 10 and 20 children with HLH a year, a large number considering how rare HLH is.

This site, operated by the Centers for Medicare & Medicaid Services (CMS), provides information on state child and adolescent health insurance programs like Medicaid and the Children's Health Insurance Program (CHIP).

Probably Genetic is on a mission to make clinical-grade genetic testing affordable and accessible to the nearly 200 million undiagnosed rare disease patients worldwide. Our free testing program applies to all people in the U.S. (except New York) with symptoms suggestive of immunodeficiency disorders.

As a leading charitable foundation and healthcare advocacy organization, the Patient Access Network Foundation is dedicated to accelerating access to treatment for those who need it most and empowering patients on their healthcare journeys. Since 2004, our financial assistance programs have helped more than 1.3 million people to start or stay on life-changing treatment.

Most hospitals are required to have programs that discount or completely forgive bills for some patients. But they don’t make it easy. Dollar For helps individual patients navigate and access hospital financial assistance.

Patient Advocate Foundation (PAF) is a national 501 (c)(3) non-profit organization which provides case management services and financial aid to Americans with chronic, life threatening and debilitating illnesses.