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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Mathilda von Guttenberg near water

UCLA student with CVID studies how mindset shapes health outcomes

December 19, 2024
Bob LeBien and family

Bob LeBien’s leadership a guiding force for IDF and IPOPI

December 04, 2024
Ariana thumbnail

Get Connected Groups expand to meet PI community needs

November 14, 2024
Colemans

Family navigates both CVID and SAD diagnoses

November 07, 2024
thumbnail for the ChronicXTwenties podcast which features three circles of Immune Deficiency Foundation colors, and the text "young adulthood, rare disease, and the joy you deserve".

ChronicxTwenties: Heartbreakingly beautiful (Part 1)

October 23, 2024
Twins Elliot and Walker Ridge

Mother creates support system for daughter with APDS

September 20, 2024
Frank final

85-year-old with PI celebrates 500th immunoglobulin infusion

August 23, 2024
beach scene

New documentary film released

August 20, 2024
'Compromised' documentary movie graphic

‘Compromised: Life Without Immunity' profiles families affected by PI

June 27, 2024
Laura Zamora and her daughter at the beach thumbnail

Woman with hyper IgE syndrome focuses on the positive

June 14, 2024
Ezra toddler 2

Teen hosts podcast featuring peers with hyper IgM syndrome

May 31, 2024
bird

Volunteer established PI education groups 33 years ago

May 08, 2024
Elias cheering

Family advocates for son with NEMO

April 25, 2024
woman standing in yellow flowers

Physical therapist understands PI as patient and provider

March 21, 2024
Scientist wearing glasses uses dropper to perform work in lab

PI diagnosis sparks PhD candidate’s neuroimmunology research interest

February 09, 2024
Woman with zebra stripes on face 2

Adulting with PI support group leader specializes in trauma

January 31, 2024
A mom, dad, and children hug and smile

Parents push Medicaid to cover four-year-old’s thymus tissue implant

January 23, 2024
undiagnosed podcast graphic

Undiagnosed (feat. The Autism Dad): Father and Son

December 05, 2023

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.