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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Family

Determined to keep moving forward

March 30, 2021
Enrolling new patients

Financial assistance available

January 26, 2021
Person typing on a computer

What is the PIDTC?

December 16, 2020
Person typing on a computer

Connection and knowledge at Rare of the Rare

October 02, 2020

Building community of young adults with CGD

May 05, 2020

CGD has shaped me for the better

April 02, 2020
Casey Warford

Casey Warford: Attitude is everything

February 28, 2020
Person typing on a computer

Live life well: Beyond CGD

November 01, 2019
Doctor and patient

Clues to a timely CGD diagnosis

October 10, 2019

Chronic granulomatous disease (CGD) - IDF Reel Stories, Esther Morales

September 26, 2019
Barbara and Joe

It Takes a Village to Manage a Primary Immunodeficiency

September 20, 2019
Respiratory infection graphic

Lung inflammation/Granuloma problems with CGD

July 26, 2019
IDF video

Gastrointestinal inflammation/Granuloma problems with CGD

July 26, 2019
Print Material Fallback

Chapter 19: Immune Dysregulation, Enteropathy, and Colitis

June 30, 2019
Print Material Fallback

Chapter 21: Chronic Granulomatous Disease and Other Phagocyte Disorders, Leukocyte Adhesion Deficiency and Neutropenia

June 30, 2019
Person typing on a computer

Understanding limitations of CGD but open to the richness of life

March 22, 2019
Tamia and Aaron

Connecting the dots to diagnosis

February 22, 2019
Person typing on a computer

Miracle flights offers medical travel assistance for children with CGD and Families

February 01, 2019

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.