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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

COVID

COVID-19: An update and Your questions Answered: An IDF Forum, February 3, 2022

February 03, 2022
Solene

'Even in the darkest times, there is hope'

February 03, 2022
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SCID Compass toolkit

February 03, 2022
IDF Podcast Graphic

IDF advocate connections: becoming a rare disease advisory council member

January 31, 2022
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SCID Angels awards research grants

January 29, 2022
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Donor spotlight: The Myjak family

January 28, 2022
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Ensuring access to care tops IDF’s policy priorities

January 27, 2022

Monitor transplants for SCID - even into adulthood

January 26, 2022

What to ask your healthcare provider: An IDF Forum, January 20, 2022

January 20, 2022

Dr. Rochester named IDF's health equity medical advisor

January 18, 2022
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Breaking down common terms in the immune deficiency space

January 13, 2022

Drug prevents major bone marrow transplant complication

January 07, 2022
Lightbulb

Immune system basics & primary immunodeficiencies: An IDF Forum, January 6, 2022

January 06, 2022

'Cleaning Lady' raises PI awareness, but also falls short

January 04, 2022
IDF Podcast Graphic

Opportunities for young people of color in science

December 29, 2021
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International experts study SCID variants in the Irish Family

December 20, 2021

Experts discuss bone marrow transplant for chronic granulomatous disease

December 17, 2021

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.