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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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How FOXP3 changed immunology: Tregs, IPEX, and the Nobel Prize explained

November 19, 2025
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Immunoglobulin product booklet

November 05, 2025
Ig

Immunoglobulin replacement therapy prior authorization checklist

October 01, 2025
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Lunch & Learn | HLH

July 31, 2025
NAC nurses Michelle Tran and Katherine Myint_Hpu for main page

Newest NAC members bring geriatric and pediatric expertise

July 15, 2025
Podcast artwork which reads "Bold conversations: Exploring the realities of health access with Dr. Nicole Rochester."

Bold Conversations: The elephant in the exam room

April 21, 2025
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Manual para pacientes y familias sobre inmunodeficiencias primarias, sexta edición

February 19, 2025
plasma

COVID convalescent plasma approved for those who are immunocompromised

January 16, 2025
IDF 2024 research grantees Drs. Emily Harris, David Nguyen, Alexandra Martinson, and Laruen Meyer.

Foundation announces research seed grants

September 20, 2024
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Template letters of medical necessity for immunoglobulin

September 04, 2024
Nurses Advisory Committee members 2024 edit

New NAC members dedicated to solving the ‘puzzles’ of PI

May 23, 2024
School nurse holds stethoscope to child's heart

School nurses aid in care of children with primary immunodeficiency

April 16, 2024
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Primary immunodeficiency education series boosts knowledge

March 26, 2024
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SCID: What healthcare providers need to know

September 10, 2023
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SCID telehealth for American Indians and Alaska Natives

September 10, 2023
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THINK ZEBRA! poster

July 24, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: What have we learned?

July 24, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: Addressing social determinants of health

July 10, 2023

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.