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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Improving PI diagnosis with machine learning

April 25, 2023
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Study looks at long-term response to COVID vaccine in immunocompromised

April 20, 2023
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Primary immunodeficiency & neurological issues

April 18, 2023

SCID research paper explores types of uncertainty faced by parents

March 31, 2023
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Leniolisib approved for treating ultrarare APDS 1 and 2

March 28, 2023

Study shows gene therapy is effective for Artemis-SCID

February 01, 2023
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IDF serves thousands through education, advocacy, and research efforts

January 24, 2023

NIH clinical trial explores fecal transplant for CGD colitis

December 08, 2022
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IDF Research Grant Program opens for 2023 applications

November 22, 2022

SCID uncertainty paper examines how parents cope

November 16, 2022

Gene therapy for ADA-SCID shows promise

October 13, 2022
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CDC analysis confirms COVID-19 danger for the immunocompromised

July 09, 2022

SCID Compass Lunch and Learn: PIDTC & IDF neurodevelopmental study

July 06, 2022
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Premature infant surveillance & quality improvement study

July 06, 2022
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Family planning considerations for SCID

July 06, 2022

Study finds CGD carriers exhibit symptoms of disorder

June 24, 2022
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Lunch and Learn: CGD carrier study

May 31, 2022

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.