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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Emily Gordon and Kumail Nanjiani

IDF joins Emily V. Gordon & Kumail Nanjiani for new campaign

November 11, 2022
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Update - Monkeypox may be a threat to immunocompromised on current trajectory

October 04, 2022
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Immunocompromised the focus of campaign featuring Jeff Bridges, Kumail Nanjiani, and Emily Gordon

September 16, 2022

COVID-19 update: New booster, Evusheld protect against virus

September 09, 2022
COVID

COVID-19: What we know now

September 07, 2022
Person typing on a computer

CDC analysis confirms COVID-19 danger for the immunocompromised

July 09, 2022
Person typing on a computer

¡Covid Tracker en Español ya está disponible!

June 01, 2022
IDF Podcast Graphic

Convalescent plasma and COVID-19 with Dr. Arturo Casadevall

May 26, 2022
IDF Forum explores origins of long COVID

IDF Forum explores symptoms, causes of long COVID

May 25, 2022
Person typing on a computer

Update - Venturing into a pandemic-weary world as a person with primary immunodeficiency

May 12, 2022
COVID

Long COVID in the PI community

April 27, 2022
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Workplace accommodations for the immunocompromised as pandemic wanes

March 30, 2022
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How you can be an effective vaccine advocate

February 14, 2022
Person typing on a computer

COVID-19 Update: Vaccines, monoclonal antibodies, antivirals

February 10, 2022
COVID

COVID-19: An update and Your questions Answered: An IDF Forum, February 3, 2022

February 03, 2022
managing stress graphic

Managing stress & anxiety during the holiday season

November 09, 2021

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.