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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Bone marrow transplant shows promise for chronic granulomatous disease

October 22, 2022
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B cells slow to replenish after BMT for SCID

September 30, 2022
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Journal chronicles bone marrow transplant for CGD

September 29, 2022
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B-cell reconstitution and IgG infusion for SCID

September 06, 2022
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What's to come - Long term follow up and SCID

July 06, 2022

SCID Compass Lunch and Learn: PIDTC & IDF neurodevelopmental study

July 06, 2022

CGD symptoms vary with superoxide production

May 02, 2022

Monitor transplants for SCID - even into adulthood

January 26, 2022

Drug prevents major bone marrow transplant complication

January 07, 2022

Experts discuss bone marrow transplant for chronic granulomatous disease

December 17, 2021
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Living with CGD: A discussion about bone marrow transplant

December 16, 2021

SCID Compass Lunch and Learn: November 10, 2021

November 16, 2021

SCID experts discuss future of treatments

November 08, 2021
Rare of the rare - An IDF summit

SCID education session: Post-transplant late effects in patients with SCID

November 05, 2021
Rare of the rare - An IDF summit

Precision medicine targeted therapy for primary immunodeficiency: Where are we now?

November 05, 2021
Rare of the Rare

Rare of the Rare examines SCID treatment long-term

September 28, 2021
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SCID Compass Lunch & Learn: August 25, 2021

August 25, 2021

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.