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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

2020 IDF Fall Advocate

Fall 2020 IDF ADVOCATE Newsletter

December 18, 2020
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What is the PIDTC?

December 16, 2020
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Documentary focuses on SCID

December 15, 2020

Unspecified primary immunodeficiency - IDF Reel Stories, Victoria Medl

December 04, 2020

Key opinion leaders discuss SCID

November 30, 2020
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SCID Compass Lunch & Learn: November 18, 2020

November 24, 2020
Genetics

Overview of genetics & PI: An IDF Forum, November 24, 2020

November 24, 2020

Understanding Immunological Testing: What Do My Lab Tests Mean?

November 20, 2020
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What is a carrier? What does it mean to be a carrier?

November 20, 2020
Doctor with older patient

PI in geriatric patients: Preserving the golden years

November 20, 2020
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Caring for the caregiver

November 20, 2020
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The connection between mental and physical health

November 20, 2020
doctor writing

Managing GI issues & PI

November 20, 2020
Blood

Blood disorders associated with PI: An IDF Forum, November 17, 2020

November 17, 2020

Managing sinus issues

November 13, 2020
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Improving SCID newborn screening

November 12, 2020
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Non-infectious complications of primary immune deficiency: An IDF Forum, November 12, 2020

November 12, 2020

SCID Compass: Coping with Post-Treatment

November 11, 2020

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.