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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

mom, dad, and baby photographed outside

The SCID journey: Navigating choices and post-treatment

January 01, 2020
Mother and son together outside.

The SCID journey: Returning home

January 01, 2020
Mom, Dad, and triplet children

The SCID journey: Planning for the future

January 01, 2020
father, child, and mother standing under a tree

The SCID journey: Navigating the hospital stay

January 01, 2020

A Zebra Tale (audio storybook)

January 01, 2020

SCID newborn screening: Leading the way, navigating the future

December 03, 2019

SCID - A family's journey through isolation

December 01, 2019
Person typing on a computer

Live life well: Beyond CGD

November 01, 2019
Person typing on a computer

Gavin’s Jedi: One family’s way of making sense of XLA

October 29, 2019

Man climbs Mount Kilimanjaro to support brother with CVID

October 29, 2019
Doctor and patient

Clues to a timely CGD diagnosis

October 10, 2019

Chronic granulomatous disease (CGD) - IDF Reel Stories, Esther Morales

September 26, 2019

Autoimmune polyglandular syndrome type 1 (APS-1) - IDF Reel Stories, Karissa Schultz

September 24, 2019

Combined immune deficiency (CID) - IDF Reel Stories, Kim Cash

September 24, 2019

Common variable immune deficiency (CVID) - IDF Reel Stories, Brian Erne

September 24, 2019

Hypogammaglobulinemia - IDF Reel Stories, The Pattie Family

September 24, 2019

Severe combined immune deficiency (SCID) - IDF Reel Stories, Rafhaela and Jose Vedia

September 24, 2019
Barbara and Joe

It Takes a Village to Manage a Primary Immunodeficiency

September 20, 2019

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.