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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Headshot of Dr. Emily Harris.

Blaese awardee targets diagnosis and treatment of Evans syndrome

October 10, 2024
Doctor with X-ray

Address lung disease early with primary immunodeficiency

September 26, 2024
PI and hepatology

PI can cause difficult-to-diagnose liver disease

September 09, 2024
IDF video

Serenity within: stress management for PI: 2024 PI Conference

August 05, 2024
IDF video

PI & hepatology: 2024 PI Conference

August 05, 2024
IDF video

Managing food allergies with PI: 2024 PI Conference

August 05, 2024
IDF video

PI & respiratory health: 2024 PI Conference

August 05, 2024
Dermatology and PI

Conference session explores susceptibility to skin conditions in PI

August 01, 2024
Woman uses asthma inhaler.

Primary immunodeficiency can bring other immune system diagnoses

May 15, 2024
Person using pen and clipboard to fill out paperwork.

Autoimmune diagnoses may obscure primary immunodeficiency

April 24, 2024

Ask the expert: PI and fatigue

March 26, 2024
thumbnail for PI and fatigue

Ask the expert: PI and fatigue with Dr. Joud Hajjar

March 08, 2024
Food Allergy

Conference features food allergy and PI session

February 29, 2024
Thumbnail for managing multiple conditions webinar

Ask the expert: Managing multiple conditions with Dr. Ramsay Fuleihan

February 13, 2024
mast cell

Mast cell activation disease diagnosis can reveal PI

January 13, 2024
autoimmunity pic

Autoimmunity in PI causes blood disorders, GI issues, lung problems

December 06, 2023
IDF video

PI and lung health

November 03, 2023
IDF video

PI & the Microbiome with Dr. Joud Hajjar

October 06, 2023

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.