| Immune Deficiency Foundation

Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Learn more about PI
Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Learn more about living with PI
Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Get involved today
Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
View resource details

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Gene therapy for SCID: Q&A with Dr. Sung-Yun Pai

January 24, 2020

Dad, mom, and daughter in the woods.

Understanding SCID: One family's journey

January 01, 2020

mom, dad, and baby photographed outside

The SCID journey: Navigating choices and post-treatment

January 01, 2020

Mother and son together outside.

The SCID journey: Returning home

January 01, 2020

Mom, Dad, and triplet children

The SCID journey: Planning for the future

January 01, 2020

father, child, and mother standing under a tree

The SCID journey: Navigating the hospital stay

January 01, 2020

A Zebra Tale (audio storybook)

January 01, 2020

SCID newborn screening: Leading the way, navigating the future

December 03, 2019

SCID - A family's journey through isolation

December 01, 2019

Person typing on a computer

Live life well: Beyond CGD

November 01, 2019

Immune Deficiency Foundation
7550 Teague Road, Suite 220
Hanover, Maryland 21076

P: 410-321-6647