Skip to main content
IDF logo

Browse resources

Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Thumbnail reading "Decoding PI: The link between PI and cancer"

Decoding PI: The link between PI and cancer

November 06, 2025
Two pairs of hands in an embrace with text which reads "Living well with PI: Caregiving for chronic illness"

Living well with PI: Caregiving for chronic illness

September 08, 2025
Immune Deficiency Foundation text logo

Lunch and Learn: HLH with Dr. Michael Jordan

August 21, 2025
Thumbnail for "IDF Lunch and Learn: HLH"

Lunch & Learn | HLH

July 31, 2025
Podcast artwork which reads "Bold conversations: Exploring the realities of health access with Dr. Nicole Rochester."

Bold Conversations: Misinformation with Dr. Cynthia Baur

July 23, 2025
hands in shape of heart

Caregiver compassion & connection guide

May 07, 2025
Podcast artwork which reads "Bold conversations: Exploring the realities of health access with Dr. Nicole Rochester."

Bold Conversations: The elephant in the exam room

April 21, 2025
Immune Deficiency Foundation text logo

Bold Conversations: Health insurance

February 21, 2025
Cropped stock photo from handbook cover.

Manual para pacientes y familias sobre inmunodeficiencias primarias, sexta edición

February 19, 2025
headset and stack of books

Q&A: Protecting yourself against COVID, flu, and RSV

December 12, 2024

Decoding PI: Unraveling the GI connection

December 12, 2024
thumbnail for the ChronicXTwenties podcast which features three circles of Immune Deficiency Foundation colors, and the text "young adulthood, rare disease, and the joy you deserve".

ChronicXTwenties: Heartbreakingly beautiful (Part 2)

October 30, 2024
thumbnail for integrative pain management video featuring two individuals doing yoga on a beach

Integrative medicine and pain management: Living well with PI

September 06, 2024
Hospital emergency entrance.

I Am A Transplant Patient emergency card

August 22, 2024
Mom jumping with two kids.

Newly diagnosed kit for kids with PI

March 22, 2024
Doctor with older patient

Bill of Rights for individuals with primary immunodeficiencies

January 25, 2024
map with points marked on journey

SCID: Questions for your child's healthcare team

September 10, 2023
Print Material Fallback

SCID newborn screening results fact sheet

September 10, 2023

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

lady looking at computer

Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.