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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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2022 Community Impact Flyer

January 17, 2023
Susan Day is surrounded by her family, from left, son Jackson, husband Jason, and son Jace.

Mom’s common variable immune deficiency diagnosis explains lifelong infections and fatigue

January 09, 2023
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History of the Medicare IVIG Access Demonstration Project

January 02, 2023
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Home IVIG becomes a permanent Medicare benefit after a decade

December 23, 2022
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Make mental health a priority in primary immunodeficiency care

December 21, 2022

Gastrointestinal disorders common in primary immunodeficiency

December 20, 2022

New campaign offers important personal perspective for the immunocompromised community and COVID-19

December 19, 2022
Doctor following up with patient

Lunch & Learn: The importance of long-term follow-up

December 19, 2022
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Lunch & Learn: Good's Syndrome

December 19, 2022
Doctor in facemask

Covid-19, flu, & RSV, oh my!

December 19, 2022

SCID bone marrow transplant can result in chronic long-term health effects

December 15, 2022
IDF Podcast Graphic

Community Q&A: Gastrointestinal issues and primary immunodeficiency

December 15, 2022

From plasma to copay accumulators, IDF achieves advocacy wins

December 14, 2022

Connect with others through IDF Caretakers Support Group

December 13, 2022

NIH clinical trial explores fecal transplant for CGD colitis

December 08, 2022
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Gastrointestinal issues and primary immunodeficiency

December 06, 2022
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Update - RSV, Colds, Flu, and COVID, Oh My…

December 01, 2022

IDF’s new office boasts convenience, flexibility, savings

November 30, 2022

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.