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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Lunch and Learn: Wiskott-Aldrich syndrome

June 03, 2022
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¡Covid Tracker en Español ya está disponible!

June 01, 2022
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Lunch and Learn: CGD carrier study

May 31, 2022
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Donor spotlight: Reverend, Freddye James, D.MIN.

May 27, 2022
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Health equity awards tackle primary immunodeficiency diagnosis and awareness issues

May 26, 2022
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Convalescent plasma and COVID-19 with Dr. Arturo Casadevall

May 26, 2022
IDF Forum explores origins of long COVID

IDF Forum explores symptoms, causes of long COVID

May 25, 2022
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Health insurance for the PI community

May 23, 2022
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Gut microbiome and immune dysregulation top PI research grant topics

May 17, 2022

SCID advocate devotes herself to helping parents navigate medical world

May 13, 2022
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Q&A with IDF's President and CEO, Jorey Berry

May 13, 2022
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Update - Venturing into a pandemic-weary world as a person with primary immunodeficiency

May 12, 2022

SCID carrier discussion explores family planning, mental health

May 05, 2022

CGD symptoms vary with superoxide production

May 02, 2022
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Families help shape SCID Compass Family Planning Guide

April 28, 2022
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Long COVID in the PI community

April 27, 2022

Survey explores provider SCID knowledge

April 25, 2022

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.