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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Advance directives provide peace of mind for patients and families

March 11, 2024
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Ask the expert: PI and fatigue with Dr. Joud Hajjar

March 08, 2024
Food Allergy

Conference features food allergy and PI session

February 29, 2024
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NavigateAPDS and Path4Ward overview

February 28, 2024
Stethoscope lying on top of insurance policy papers

Alternative funding programs hinder access to medications

February 26, 2024
Equity, inclusion, and diversity spelled in wooden blocks.

New health equity initiative launched for immune deficiencies

February 22, 2024
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Ask the expert: Managing multiple conditions with Dr. Ramsay Fuleihan

February 13, 2024
Scientist wearing glasses uses dropper to perform work in lab

PI diagnosis sparks PhD candidate’s neuroimmunology research interest

February 09, 2024
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Adulting with PI support group leader specializes in trauma

January 31, 2024
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Complement deficiencies

January 30, 2024
Y-shaped antibody molecule.

Decoding antibody deficiency diagnoses

January 25, 2024
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Strategic Plan 2024-2026

January 25, 2024
Genetics

Addressing accessibility of gene and cell therapies

January 24, 2024
A mom, dad, and children hug and smile

Parents push Medicaid to cover four-year-old’s thymus tissue implant

January 23, 2024
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2023 Community Impact flyer

January 16, 2024
mast cell

Mast cell activation disease diagnosis can reveal PI

January 13, 2024
covid update

COVID update stresses the importance of knowing individual risk

December 20, 2023
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COVID's impact on the PI community

December 19, 2023

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.