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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Child receiving vaccine

Statement regarding the leadership of the U.S. Department of Health and Human Services

December 02, 2024
Older woman receives vaccine in the upper arm.

Update: What RSV preventatives mean for those with PI

October 24, 2024
image of nurse checking a patient's heart rate with text "Decoding PI: Protecting yourself against covid, flu, and RSV.

Decoding PI: Protecting yourself against covid, flu, and RSV

October 07, 2024
IDF video

Translating microbiology of infections into genetics of immunology: 2024 PI Conference

August 05, 2024
Y-shaped antibody molecule.

New COVID-19 preventative Pemgarda authorized for immunocompromised

March 26, 2024
Print Material Fallback

The continued need to protect the health of the immunocompromised

March 12, 2024
Man blowing his nose.

Update: Fall immunizations: COVID-19, flu, and RSV

September 13, 2023
Person typing on a computer

What the end of the public health emergency means for those with PI

May 04, 2023
Person typing on a computer

Study looks at long-term response to COVID vaccine in immunocompromised

April 20, 2023
Person typing on a computer

Update - Evusheld no longer authorized in the U.S.

January 26, 2023

New campaign offers important personal perspective for the immunocompromised community and COVID-19

December 19, 2022
Doctor in facemask

Covid-19, flu, & RSV, oh my!

December 19, 2022
Person typing on a computer

Update - RSV, Colds, Flu, and COVID, Oh My…

December 01, 2022
Emily Gordon and Kumail Nanjiani

IDF joins Emily V. Gordon & Kumail Nanjiani for new campaign

November 11, 2022
Person typing on a computer

Update - Monkeypox may be a threat to immunocompromised on current trajectory

October 04, 2022
Person typing on a computer

Immunocompromised the focus of campaign featuring Jeff Bridges, Kumail Nanjiani, and Emily Gordon

September 16, 2022

COVID-19 update: New booster, Evusheld protect against virus

September 09, 2022
COVID

COVID-19: What we know now

September 07, 2022

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.