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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Hayden Scott as a adult standing in a radiation machine.

PhD student with PI works to improve cancer care

December 04, 2025
Ariell with family

Arielle’s PI journey led her to advocating for the immunocompromised

October 31, 2025
'Compromised' documentary movie graphic

Documentary film earns film festival recognition

October 16, 2025
Katherine Taylor with dogs mural

Muralist with CVID spreads joy through her art

October 15, 2025
Winkelstein tease

Jerry Winkelstein helped build IDF’s respected reputation

July 02, 2025
Boy holding heart symbol

How Medicaid cuts could impact a family affected by SCID

June 16, 2025
Catilin BenVau stands with co-workers at a rocket testing site 2

Rocket scientist with CVID encourages others to pursue their passion

June 03, 2025
Amy Johnson at the river

Woman with CVID encourages others to ‘get involved’

May 21, 2025
Kim DiGangi smiles and wave at Walk for PI

Peer support program builds connection

May 08, 2025
Gaby Talarico in the sunflowers

Thirty-year-old with APS type 1 advocates for her community

April 10, 2025
Susan and husband

Susan finds "priceless" support system in the Immune Deficiency Foundation

April 04, 2025
Thomas and family

Mother details harrowing journey to son's diagnosis and relief of finding the PI community

April 04, 2025
Kelli Williams head shot

Work-life specialist with CVID serves Air Force trainees

March 13, 2025
Myles Temple holding his stem cells for BMT

Powerlifter with SCID finds strength in family, friends, and faith

February 19, 2025
Denise Reich painting

Patient advocacy writer draws on experience with CVID

January 23, 2025
Undiagnosed podcast thumbnail with person walking in shadow toward light. Text in corner reading "Stories of the long journey to PI diagnosis".

Undiagnosed: The Businessman

January 07, 2025
Mathilda von Guttenberg near water

UCLA student with CVID studies how mindset shapes health outcomes

December 19, 2024
Bob LeBien and family

Bob LeBien’s leadership a guiding force for IDF and IPOPI

December 04, 2024

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.