As you begin working with healthcare providers to create a treatment plan, you may want to consider making connections with other individuals and families impacted with CGD. It may be helpful to know that many other have been down this path before and you are not alone. As a patient-driven organization, the Immune Deficiency Foundation (IDF) provides resources for patients and families living with primary immunodeficiencies (PI) such as CGD. You can find support from other members of the community through any of the following programs:
Peer Support Program
The IDF Peer Support Program provides people with PI, their family and friends with the opportunity to connect with others who share similar relationships to PI. The program matches you with a trained Peer Support Coach with shared experiences. Click here to learn more about IDF's Peer Support Program.
Get Connected Groups
IDF Get Connected Groups bring together individuals diagnosed with PI and family members in their local communities. Meetings allow individuals to share experiences, receive information and gain support. Click here to learn more about IDF Get Connected Groups
IDF Friends Discussion Forum
IDF Friends is a private, online social community created exclusively for patients and family members living with primary immunodeficiencies (PI). Join the discussion at https://idffriends.org
CGD: An Official IDF Facebook Group
This Official IDF Facebook Group is for people diagnosed with CGD and their family and friends. It is a private place where people affected by CGD can network, ask questions, and share insights and experiences. Click the following link to join (You must sign into Facebook to join the private group): https://www.facebook.com/groups/IDFCGDGroup/?source_id=7749106780
IDF Walk for Primary Immunodeficiency
Held in cities across the U.S., IDF Walks bring together our passionate community. Exhibits are available for participants to learn more about the services and products available to the PI community. These events also allow participants the unique opportunity to network with other families while raising awareness of PI. Learn more at https://walkforpi.org
